Tag Archives: blessings

You Won’t Believe What Happened!

Disclaimer: Unless you are the parent of a child who faces exceptional challenges or has special needs, the following maybe lost on you. And that’s okay. Truly. It is.

This may not seem like a big deal to you, but today Jackson snapped and unsnapped his shorts. You may not grasp the significance of this, but I’ve waited for years for this to happen.   I’m talking about what most folks perceive to be the simple act of closing a fastener with two fingers and two thumbs. To date, this simple act has been out of Jackson’s grasp (no pun intended).

Fastening a snap!

Fastening a snap!

While I was getting dressed this morning, Jackson came running in to show me what he had done. I was happier for the pride he had in himself than I was for how proud I was of him. We’ve worked on this “simple” act for years. Today was a watershed event for our son.

Additionally, while at lunch, Jackson was able to traverse independently, and follow instruction when needed, in order to complete the maze on the restaurant’s placemat. Please don’t miss this. Jackson has worked with an occupational therapist for years. Until recently he was unable to properly grasp a writing implement. The fact that he is not only able to hold a Crayon, but is able to focus and discern a path and heed instruction is something we thought to be potentially impossible.

Navigating a maze

Navigating a maze

Our God is so good, folks. He is so very, very good. And we are so very, very grateful.

The difficulties and struggles of today are but the price we must pay for the accomplishments and victories of tomorrow. ~ William. J. H. Boetcker

Rule Breaker

If you obey all the rules you miss all the fun. ~Katharine Hepburn

Having the time of my life.

Forty-nine years, 346 days. That’s how old I am as I draft this post. I will be 50 years old at the end of this month. This is a monumental birthday for me. It has certainly given me pause to think. I think about the fact that I’m now in the last half of life. I spend a great deal of time thinking about the fact that I’m (soon to be) 50 with a five year old with developmental challenges—and worry greatly about being here wholly, completely and physically for him as he grows up. I think about the fact that I’m not as sharp (in any respect) as I used to be. I think about the fact that my husband and I will most likely have to work every day we’re above ground in order to maintain life, as we know it. Please don’t misunderstand me. These are not regrets. They’re merely realities—realities you don’t think about at 20, 30 or probably even 40. (At least I didn’t.) But 50? Well that’s a whole other ballgame.

There is another side to the coin though. In addition to concerns I have about life, I also spend a great deal of time reflecting on how richly I’ve been blessed throughout my life. I didn’t always see it that way. I had many, many struggles as a young adult. I carried a lot of bitterness, disappointment and regret around. But I’m so thankful God has lifted those burdens from my shoulders. Grace covers a lifetime of heartache, and I am eternally grateful to Him for that.

Yet another byproduct of turning 50 is permission I’ve given myself to live a little—for me. As the majority of wives and mothers do, I’ve spent a good deal of my life living to care for others. We inherently put the needs of others above our own. I know I do. And I’m more than okay with that. I’m grateful to have a family who needs me. However, wives and mothers also need to feed our own spiritual and emotional selves. The last five years have been very challenging, and at times draining. That’s the nature of the beast. But I’ve recently found something I enjoy immeasurably. Skateboarding. Yes, you read that correctly. Skateboarding.

Greg and I initially bought boards in February so we could accompany Jackson to the skate park. Jackson has always loved to ride his scooter—something that required me to run alongside him—neck-and-neck, for safety’s sake. I was OVERJOYED (let me say that again—OVERJOYED!) to learn he could ride his scooter at the local skate park, as it was getting more difficult for me to keep up with him. (See paragraph one RE: lack of sharpness.) I thought the skate park would afford me the opportunity to put my feet up and relax while Jackson rode his scooter. Boy was I wrong!

Greg and I quickly learned how much fun it is to skateboard. We bought boards and started to skate ourselves. Then we bought new boards because we learned that our original boards were for “cruising.” Cruising? We wanted to skate!  We didn’t want to just putter around the park. We wanted to skate ramps and bowls! We wanted to drop in! And so we did. And you know what? We’ve been having the time of our lives! Literally. We go to the skate park as often as we can. Jackson rides his scooter and Greg and I skate. We encourage each other, watch each other’s progress and celebrate each other’s accomplishments. It is truly a family affair.

I recently treated myself to lessons for my upcoming birthday. I scheduled seven lessons with a young man named Tommy who works at our local skate park. Unfortunately, our final lesson was rained out. (I was deeply saddened.) Tommy was a saint. A saint! He could’ve taken one look at this middle-aged mother and begged off. But he didn’t. And I am so grateful for that. Not only is Tommy a great instructor; he’s truly a great person. (Tommy, your folks got it right.) My life is richer for the six hours I spent with this young man. I was drawn out of my comfort level every minute we were together. He had me skating switch/fakie at heights and speeds WAY above my comfort zone. And equally death-defying—Tommy had me dropping in independently by the end of our time together.

Here’s a video of my first independent drop in.

http://on.fb.me/1wjdUKM

I took a few spills, which were never Tommy’s doing. I simply didn’t know what to do with myself post maneuver. But I got up and kept going.

Overestimated my abilities to fakie a steep ramp, post drop in.

Overestimated my abilities to fakie a steep ramp, post drop in.

I learned so much from Tommy, not only about skateboarding, but also about myself. I learned that even at fifty I’m still as curious and tenacious as I was at 20, 30 and 40. But more importantly, I’m more intuitive and open to correction and instruction than I was at those ages. My life is so much richer for those six short hours. I’m so thankful I took that step and that time for myself. Contusions aside, I have a newfound appreciation for this body God has created, a deeper love for skating, a greater gratitude for my tenacity, and a new friend I hold dear to my heart. Thank you, Tommy, for letting me fly.

At work, pre-lesson.

At work, pre-lesson.

Sweaty! Tommy and me apres lesson (and first independent drop in).

 

Closing out another school year makes me realize just how far munchkin has come—especially over the past year.  At times it may not seem like we’re making progress (or not as fast as I’d like, might be a more accurate statement), however, when I take a step back and really think of those early days and the warning signs I saw, Jackson has progressed light years from where he started.

The other day I was compiling a mental list of the red flags that initially tugged at my heart years ago.  The list filled my head so quickly that I thought I should write it down, if not for any other reason than to remind myself of Jackson’s progress.  The following is a cursory list of things that used to send Jackson into a complete and total sensory meltdown.  The majority of these things have become non sequiturs, or bother him only minimally and only on rare occasions.

  • Hairdryer
  • Leaf blower
  • Hand dryers in public restrooms/being IN a restroom with hand dryers
  • Being in our swimming pool
  • Open car windows and/or sunroofs
  • Coffee grinder
  • Blender/juicer
  • Teakettle
  • Loud noises
  • Unfamiliar situations
  • Beach/sand
  • Standing in grass while barefoot
  • Having his photograph taken

It’s not a brief list.  Admittedly, I’ve taken his progress for granted and had forgotten most of these things.  It’s only when I really give pause to life’s day-to-day activities that I’m taken aback by all he has overcome.

The past few weekends have been busy for us.  We’ve had opportunity to participate in a couple of terrific autism-related events. Mother’s Day weekend Jackson participated in the local Surfer’s For Autism (http://www.surfersforautism.org/) event.  This is the second year we’ve been involved with this fabulous organization/event.  Last year, Jackson was terrified.  Although he had taken swimming lessons, he hadn’t yet learned to swim.   I understand how this would be overwhelming in and of itself.  Additionally, the prospect of getting water in his face was terrifying to Jackson.  This year, the event was a huge coup for munchkin.  Initially he was determined he was NOT going to surf.  He had convinced himself a tidal wave was going to sweep him out to sea.  But with much coaxing from me, my husband and the organization’s amazing volunteers Jackson gave surfing try.  With a death grip on the board he made multiple attempts to ride the waves to shore on his tummy.  That was all I asked for—that he give it a try.  I couldn’t have been more proud of my little bug.

An SFA wristband. A year ago Jackson wouldn’t even consider wearing it. This year he wore his band for the entire event. Small victories.

 

 

SFA Surf

 

 

 

 

 

 

This past weekend we participated in a 5K fun run/walk and kids’ walk for Florida Atlantic University’s (“FAU”) Center for Autism and Related Disabilities (“CARD”) (http://www.coe.fau.edu/centersandprograms/card/default.aspx).  My race took place at 7:30 AM and Jackson was excited to cheer me on.  The kids’ race was slated to take place immediately following the 5K.  Prior to Saturday morning Jackson had been excited at the prospect of running a race.   Once we arrived at the race, however, he stated he didn’t want to run.  I wasn’t going to push the issue.  I ran my 5K and while walking for my cool down I asked Jackson if he would run if I ran with him.  He said, “Sure!  Let’s go!”  We returned to the starting line and Jackson ran his first race.  He loved it!  Not only did he run, he was the first to cross the finish line.  He has already asked me when he can race again.  I’m so proud of Jackson for stepping out of his comfort zone.  That’s not an easy task for anyone, let alone someone with sensory processing issues.  And it’s not something he would’ve dared do just one short year ago.

CARD Race BibsJax Race

We also attended a birthday party for one of Jackson’s friends yesterday.  There have been many birthday parties we’ve attended where Jackson adamantly refused to participate in the activities and simply wandered off to lay on the floor, alone.  He had no interest in the excitement of the parties or the children.  Watching Jackson withdraw into himself at these parties was very difficult for me to observe as a parent.  On those occasions I honestly didn’t know what the future held for Jackson or for us as a family.  But watching him fully engaged, running and playing with his friend and the other children yesterday filled my heart with joy.

The past few years may not have always been easy and required much therapy and work, but it is so heartening to see the fruits of Jackson’s labor.   Of course, his progress makes this mama happy, but more importantly I’m thrilled to see Jackson overcoming, accomplishing and participating in things that were but a dream just a few short years ago.  I’m proud of you, Jackson.  You have worked so hard for these victories.  Savor them, my sweet boy.  Savor every minute of them.  You’ve earned it!

(If you’re interested, Jackson also participated in a Mother’s Day video at our church, Palm Beach Community Church (http://pbcc.cc).  Again, this is something he would absolutely NOT have considered doing a year ago.  Anytime the children’s ministry performed during a service, Jackson would bolt from the stage to the safety of his Sunday school teacher’s arms.   My husband and I both had tears in our eyes as we watched this video.  Perhaps you’ll get a chuckle out of it. Jackson appears at approximately minute 2:12 and at the end.  I hope you’ll take a look.  Enjoy!)

Mother’s Day at Palm Beach Community Church

I was out for a run yesterday morning when it started to rain.  My initial thought was:  Boogers!  I’m about to get wet.  And then I thought, is that such a bad thing?  It was hot and humid.  I was soaked with sweat.  As long as I protected my iPhone, a little rain should be nothing to fret over.  I continued on my run and as I approached a curve I looked up to see blue skies behind the clouds.

Look up!  Blue skies are ahead.

I thought, what a great metaphor for life.  Oftentimes we fear something we have no need to fear.  If we simply look ahead—past our current circumstances, we just might see a favorable outcome within our reach.  All we have to do is stay the course and keep plugging along.  Things will get better.

So whatever you’re facing today don’t turn back, my friend.  Forge ahead and know you are not alone.  You’re in good company.  Folks like me are running right alongside you.  Just remember to look ahead and keep your head up.

The way I see it, if you want the rainbow, you gotta put up with the rain. ~Dolly Parton  

It’s a good thing I don’t write to earn my keep.  If that were the case I’d be starving based on my last blog post.  Writing is indeed an outlet for me, but it is also a privilege—one I’m not often afforded.  The tradeoff is rich, however.  Our little tribe has lived a rather full life over the past few months.  Not full by the world’s standards, but full in the meaning of life.  We’ve shared a lot of quality family time, and Jackson and I have had a lot of special mama-son adventures too.  Throw in work and household responsibilities and well, you know what I mean.  Time escapes me.

Summer is fast approaching.  I recently finalized our summer schedule.  This is something new for me.  A summer “schedule” isn’t something I’ve had the luxury of planning in the past. However, Jackson has reached some major developmental milestones in the past year, so blessedly some opportunities have opened up to him.

One such opportunity is a weeklong day camp someone has very unexpectedly and graciously presently to Jackson.  The offer was completely unsolicited and I cannot express in words how very grateful I am at the prospect of this camp.

Over the years I have received countless empty promises of assistance and help from friends and acquaintances.  These empty promises, combined with the general disappearance and/or absence of folks I once counted as friends, have left me jaded to say the least.  I’m no longer bitter about it (admittedly I once was), it’s just a fact of life I imagine most parents of children with varying challenges face to one degree or another.  Once I accepted the exodus of these folks from our lives it freed me to be self-sustaining.  All this to say, opportunities such as this camp haven’t been extended to us in the past.  Every activity Jackson participates in has been a hard fought victory for which I’ve groveled and even shed a few tears.  Victories I do not take for granted for nary a second.  I was and still am blown away by this mere acquaintance’s gracious invitation.

I profoundly expressed my gratitude while speaking with her to complete the initial paperwork.  She downplayed the situation, stating she believes the world needs a stronger sense of community—something I wholeheartedly believe and try to live out daily.  The world would be a much better place if we all stepped out and stepped up to help those around us.  This may be something as simple as surprising your coworker or employee with a coffee or asking your neighbor if they need something at the grocery story.  Kindness and generosity don’t have to break the bank, and are oftentimes something as simple as holding the door for someone or saying, “Thank you,” to someone who opens a door for you.

So I emphatically say, “Thank you, kind woman,” for taking a chance on our son. It’s going to be a great summer.  My heart tells me so.

Perseverated is not a bad word

per·sev·er·ate – To repeat a word, gesture, or act insistently or redundantly.

Recently, my husband and I made plans for a “date night” with our son.  Weather permitting (which it didn’t), we planned to go on a picnic dinner the following evening.  Our date was to include the three of us and our dogs at a local dog park.  My husband voiced the idea to our son prior to his bedtime one night this week.  The impending evening’s date was the first thing Jackson mentioned upon waking the following morning.  And according to Jackson’s teacher (the same day), he apparently “Perseverated on needing day to end so he could get to ‘date’ with mom and dad at dog park.”

I’m just spit balling here, but I don’t think the teacher’s note was written in a favorable tone.  And please understand, I don’t think Jackson’s teacher is being overtly critical or mean spirited when she pens notes such as this.  (This wasn’t the first time.)  But I’ve got to tell you, I also do not instinctively see a negative when I see a note such as this—probably to his teacher’s disappointment.  My mind (blessedly) isn’t wired for that.

As challenging as Jackson can be at times, I’m grateful I can see his light shining through.  Additionally, I’m able to remind myself of his difficult origins.  If it sounds as if I’m trivializing matters, please know I’m not.  And I’m also not saying I don’t sometimes lose my cool.  I do.  (See previous post from 1/23/2014 titled “Fail.”)  But I also know I drive myself most crazy when I let people of “authority” into my head.  That’s when I start to panic over Jackson’s “differences” and challenges.  It’s when we receive back-to-back reports of “defiance” and meltdowns that I literally go into overdrive researching autism spectrum disorder (“ASD”), Asperger’s Syndrome and sensory processing disorder (“SPD”).

With a clear head, at least for this moment, let me tell you what I really see when I read a notation such as the one mentioned above.  When I read the word “perseverate,” I see perseverance—a noun meaning steadfastness in doing something despite difficulty or delay in achieving success.

When I see the word “date,” I think of doing an activity with someone you might have a relationship with.

And as for the words “mom and dad,” well those are a given.  And they’re really special, considering Jackson’s origins as an orphan who spent his first five months of life in an orphanage in Ethiopia.  Truly.  Special.  I’m beyond humbled with gratitude over the titles “mom” and “dad.”  It’s one I sport proudly and don’t take lightly.

Sometimes it’s all about perspective.  The definition of which is:  The capacity to view things in their true relations or relative importance.  Thinking back to that same day, and the expectancy of a date night with Greg, Jackson and our dogs and some Chick-fil-A at the dog park?  I confess.  I perseverated too.  That’s the truth.  It’s the absolute truth.

Happy Birthday

Britt

Today, we celebrate the birth of an utterly amazing woman who took the world by storm 32 years ago this very day.  Happy birthday to our beautiful daughter, Brittany.

Britt, seeing the person you’ve evolved into over the past three decades is what allows me to parent your very precocious brother today.  Through you, I am blessed to see the beauty that lies on the other side of the parenting mountain.

You are fierce!  You are strong!  You are brilliant!  You are light!  You are laughter!  You are love!  And you are loved.

Today, we celebrate you, my beautiful daughter.  The world is a much better place because of you.

The relationship between parents and children, but especially between mothers and daughters, is tremendously powerful, scarcely to be comprehended in any rational way.         ~ Joyce Carol Oates